Announcement

Collapse
No announcement yet.

Back on Prednisone.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • #16
    Jose?

    What happened to you, dear? Feeling okay?
    Create signature while not logged in, edited through forums.davita.com on 08/15/2012 @ 12:53!!!!!

    Comment


    • #17
      Sorry guy’s last week work was very crazy\busy. I'm feel ok just counting the days that I'm completely of the prednisone. Well I’m down to 10mg per/day of prednisone.
      I’m notice as I go down on the prednisone I’m getting up less at night so far that’s good. I wonder how long would it take for the prednisone to be completely gone from my body?

      Jose

      Originally posted by IHaveFaith View Post
      Jose?

      What happened to you, dear? Feeling okay?
      Last edited by jose001; 08-20-2012, 11:15 AM.

      Comment


      • #18
        Here is one summary. http://www.ncbi.nlm.nih.gov/pubmed/20966123

        Dr. Virgina Savin led some research on identifying this. I had blood evaluated while at the NIH for a drug study intended to slow down protein for those with FSGS. I recall I was given a # that was to indicate the likelihood of reoccurance of FSGS after transplant. It reoccured in my first transplant within months.

        I was able to see Dr. Savin(we are both in WI) before my second transplant and chose to pursue plasmapheresis and a non-related donor for the second transplant. Also I was able to be included in a research study where I took Galactose (sugar water, really) to bind to the galactose. I have only a trace of protein three years post-op

        http://ndt.oxfordjournals.org/content/24/9/2938.full
        Diagnosed FSGS 1998
        Related Transplant 2004
        Unrelated Transplant 2009

        Comment


        • #19
          Well... Coming off Prednisone is not as easy as they say!!!
          five days since my last dose of prednisone and i have body ack, fatigue, muscle aches and some nausea after eating.

          I hate Prednisone!!!

          Thank you Misela for the info.
          that's awesome that your protein is that low.
          Would you say it was the Galactose that help you?


          where are you IHaveFaith?

          Thank you all,
          Jose


          Originally posted by Misela View Post
          Here is one summary. http://www.ncbi.nlm.nih.gov/pubmed/20966123

          Dr. Virgina Savin led some research on identifying this. I had blood evaluated while at the NIH for a drug study intended to slow down protein for those with FSGS. I recall I was given a # that was to indicate the likelihood of reoccurance of FSGS after transplant. It reoccured in my first transplant within months.

          I was able to see Dr. Savin(we are both in WI) before my second transplant and chose to pursue plasmapheresis and a non-related donor for the second transplant. Also I was able to be included in a research study where I took Galactose (sugar water, really) to bind to the galactose. I have only a trace of protein three years post-op

          http://ndt.oxfordjournals.org/content/24/9/2938.full

          Comment


          • #20
            Does anyone know how long it takes for the prednisone to completely by gone from your body?
            And your body starts making is own cortisone?

            Are you ok IHaveFaith? Haven’t heard from you.

            Thank you all,
            Jose

            Comment

            Working...
            X