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  • marionjk
    replied
    Hello everyone, I was just told I have stage 3 kidney disease and I'm also a type 2 diabetic. I'm having an cardiac ablation next month because of A-fib. I feel like I've been given a death sentence. I've taken the Davita Kidney Smart class, saw it on line and signed myself up immediately. My PC doctor is getting me a referral to a kidney specialist. I don't mind saying I am scared. I'm not ready to give up yet even though I'm 74.

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  • Poozy1238
    replied
    Hi, Abetterme and Heavyd, I hope this will encourage you. I am 78 and not in great health besides the CKD. I was diagnosed about 13 years ago, and immediately 1) saw a dietitian for help, and 2) went on the renal diet. My GFR is now 37, better than it was when I was diagnosed!!! I stick pretty closely to the diet, and don't get nearly enough exercise because of other medical problems, so my staying so stable is probably due to diet alone. Moral of the story: Keep your chin up, see a nephrologist, ask for a referral to a dietitian, and get on that diet! As I keep saying (to anyone who will listen), the davita.com recipes are fantastic.


    In addition, the dietician gave me some wise advice: don't give up any food totally, or you will one day break down and binge. Allow yourself a little "treat" of a "forbidden" food periodically.

    A caution: your doctor should keep close tabs on your sodium (salt), phosphorus, protein, and potassium levels; you might have to adjust the diet a little once in a while if your counts are off. For example, I actually have had to increase both my potassium and salt levels, and decrease the phosphorus. No big deal.

    Most important: hang on to your faith!!! And know that there are a lot of us out here in the same boat and cheering you on! My best to you both.

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  • realsis
    replied
    You are not alone. I'm 48 and have stage 4. Educate yourself, watch your diet and don't worry too much. Ask lots of questions and reach out to people who are going through this as well. Hope this helps and best wishes

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  • realsis
    replied
    Hi. I understand. I'm 48 and have stage 4. Last year I had a GFR Of 15. five point's away from dialysis. The good news is what ive learned over the last year is you have more control than you realize with your function and numbers. By diet Alone I was able to improve my function to 40 GFR . My most recent test was GET 32. The numbers can go up and down but you can improve them. Watch you're foods drinks and medication. With some positive changes you can improve or at least hold your numbers. Remember you have more control than you think.
    Last edited by realsis; 10-29-2017, 11:50 PM.

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  • Martypants12
    replied
    Just research good foods. with low potassium and phosphorus , witch is like a lot of foods. your going to be a walking food wiz calculator. and your probably going to become an amazing cook. there a lot of getting used to . kidneys will have your blood pressure high and you will have nightmares. if you don't take your meds.
    Hemo gets easier. Just take that time to not worry about anything and meditate. the staff actually will get to know you, no matter how scary they may seem at first.
    they will be your family so embrace them. ask questions. lots of questions.
    see if you can get on pd dialasys where you just put a sugar water in your tummy and it takes all the toxins out. do lots of research on what your eating piriod. im 29 with final stage kidney failure. so young I know. but I'm in mental and physical shape because I did research.
    you will automatically get disability if you want. and other good healthcare
    Last edited by Martypants12; 10-03-2017, 08:24 AM.

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  • kmoser05
    replied
    I'm 23 and just got diagnosed back in April with stage 3 CKD. It's okay and normal to be scared. Honestly I am terrified at times. But all we can do is wake up the morning and be thankful we woke up. Go out there and give the day your best shot, and at the end of the day be thankful we had another day. This is a great family here, we all know what each other is going through and we are here for each other. Keep your chin up, no sense worrying about something you have no control over. Focus on the here and now and giving your life all you got.

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  • busy
    replied
    Hey Danny, how can we help ?

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  • busy
    replied
    Hey Danny, how can we help ?

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  • orangecity2015
    replied
    Busy: Very well stated. CKD can be very disconcerting when one is diagnosed but is much that can be done to help the condition. I was diagnosed at stage 3b and put on a "pre dialysis diet" and prescribed exercise. So far things have stabilized. It can be somewhat of a lifestyle changer. Some days one feels good and other days not so. It is great we have Davita to give us information, diet and menus, tracking etc. The Kidney Class 101 was a great help. My wife attended also and helped her understand the condition.

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  • busy
    replied
    Hello Heavy and others. I want to welcome you here. First.....take a deep breath, and exhale as someone said......even if you are stage 3 or 4
    ​we're not going to put you on dialysis tomarrow..
    ​First, if you are a stage 3 or higher, according to some guidelines, you need to see a nephrologist (kidney doctor)...while in some cases you
    ​might not be able to go back to a level 2 or better, the nephrologist will focus on trying to stop things getting worse. These folks have more
    ​advanced training than your average doctors on this issue.
    There are many different causes of decreased kidney function, which you need to learn about, which will help you to understand and
    ​help yourself with, but the bottom line tho is that you are not cleaning your blood or reducing the amount of fluid as you should.
    Depending on what stage you are in, you may nor may not be placed on a diet restriction....depends if you have a lot of
    ​protein in your urine, high potassium or phos levels.....your nephrologist will guide you, or I should say the dietician they
    refer you to will......as far as eating, if you fall off the wagon on a meal, it's not going to kill you (usually)....
    ​at this stage its basically educate yourself, and help yourself.....diet will be your best friend, along with excerise, and control
    ​other things, such as diabetes, and similar things. Also if you are a bit bigger than what you should be, it would help you
    and take pressue off your kidneys.
    ​as for support...we're all here.....yes, CKD is a $%^@.....might as well be honest about it...and some days your going to
    just feel like saying $%^@ with it......that's normal..and it's ok....and it's normal......you just have to just pull yourself
    ​together and go forward....yes, you fouled up, but you can start again.

    ​you can also ask for help.......depending on your stage, there is the RSN (renal support network), and the like....

    ​we need a "working group" support network....maybe it could be here........so, to barrow a line from motel 6,
    we'll leave the porch light on here for ya..........so questions (no matter how silly you think) at any time (we're open 24
    ​hours a day).....and there are a few experts lurking in the background, that if everyone on here is stumped, they will
    ​hop in and help make things clear.......

    ​so welcome......

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  • Heavyd870
    replied
    My name is danny am stage3b looking for support

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  • bremondco
    replied
    I understand the feeling that food has become my enemy. Certainly the recommendations of friends, coupled with a newcomer's brief knowledge of the diet, can make the entire enterprise seem impossible. The motivation, though, is very strong, and the need to be faithful to the diet can seem obsessive. We signed up for a Kidney Smart class, which we took last Friday, and it was immensely helpful in guiding us through the complexities of the diet toward an understanding of what is appropriate for me at this point in Stage 3. I use the Diet Helper to analyze every meal. For me this has led to a new interest in food and in the parts of the new diet that I can enjoy. I am happy to share this with Julie, who loves to cook in any case, and is now engaged in cooking in a way that promotes my health.

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  • ErikaStahl
    replied
    Welcome new members. I understand being nervous with a new diagnosis, but understand that CKD is a very manageable condition. CKD does require a lifestyle change, primarily dietary changes. Making healthy food choices can prevent the CKD from getting worse in most cases. I would recommend hiring a dietitian who specializes in renal disease. You can find a dietitian on eatright.org OR Davitaeatsmart.com. Davita.com also has many wonderful free resources such as "diet helper", "food analyzer" and they have excellent recipes. Best of luck. I wish you all good health! Sincerely, a Registered Dietitian from Virginia.

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  • orangecity2015
    replied
    It is a big adjustment and somewhat of a lifestyle changer but it can be done and your levels can stabilize. I am 76, stage 3 and been on diet and exercise routine prescribed by my Primary Doctor for over a year. . Davita has many resources to help you from menus, to classes, to diet tracking etc.

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  • dmetoyer529
    replied
    Its an adjustment........take a deep breathe, calm your nerves. You can do this!!!! We were all there, the initial shock scared all of us. take time to digest all the information. Ask your Dr. to recommend a Nutritionist to assist you with your diet. Get active, take walks, join a gym, helps you get your mind right. And we are all here to assist with advice if needed.

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