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  • #16
    Hey Danny, how can we help ?

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    • #17
      Hey Danny, how can we help ?

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      • #18
        I'm 23 and just got diagnosed back in April with stage 3 CKD. It's okay and normal to be scared. Honestly I am terrified at times. But all we can do is wake up the morning and be thankful we woke up. Go out there and give the day your best shot, and at the end of the day be thankful we had another day. This is a great family here, we all know what each other is going through and we are here for each other. Keep your chin up, no sense worrying about something you have no control over. Focus on the here and now and giving your life all you got.

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        • #19
          Just research good foods. with low potassium and phosphorus , witch is like a lot of foods. your going to be a walking food wiz calculator. and your probably going to become an amazing cook. there a lot of getting used to . kidneys will have your blood pressure high and you will have nightmares. if you don't take your meds.
          Hemo gets easier. Just take that time to not worry about anything and meditate. the staff actually will get to know you, no matter how scary they may seem at first.
          they will be your family so embrace them. ask questions. lots of questions.
          see if you can get on pd dialasys where you just put a sugar water in your tummy and it takes all the toxins out. do lots of research on what your eating piriod. im 29 with final stage kidney failure. so young I know. but I'm in mental and physical shape because I did research.
          you will automatically get disability if you want. and other good healthcare
          Last edited by Martypants12; 10-03-2017, 08:24 AM.

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          • #20
            Hi. I understand. I'm 48 and have stage 4. Last year I had a GFR Of 15. five point's away from dialysis. The good news is what ive learned over the last year is you have more control than you realize with your function and numbers. By diet Alone I was able to improve my function to 40 GFR . My most recent test was GET 32. The numbers can go up and down but you can improve them. Watch you're foods drinks and medication. With some positive changes you can improve or at least hold your numbers. Remember you have more control than you think.
            Last edited by realsis; 10-29-2017, 11:50 PM.

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            • #21
              You are not alone. I'm 48 and have stage 4. Educate yourself, watch your diet and don't worry too much. Ask lots of questions and reach out to people who are going through this as well. Hope this helps and best wishes

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              • #22
                Hi, Abetterme and Heavyd, I hope this will encourage you. I am 78 and not in great health besides the CKD. I was diagnosed about 13 years ago, and immediately 1) saw a dietitian for help, and 2) went on the renal diet. My GFR is now 37, better than it was when I was diagnosed!!! I stick pretty closely to the diet, and don't get nearly enough exercise because of other medical problems, so my staying so stable is probably due to diet alone. Moral of the story: Keep your chin up, see a nephrologist, ask for a referral to a dietitian, and get on that diet! As I keep saying (to anyone who will listen), the davita.com recipes are fantastic.


                In addition, the dietician gave me some wise advice: don't give up any food totally, or you will one day break down and binge. Allow yourself a little "treat" of a "forbidden" food periodically.

                A caution: your doctor should keep close tabs on your sodium (salt), phosphorus, protein, and potassium levels; you might have to adjust the diet a little once in a while if your counts are off. For example, I actually have had to increase both my potassium and salt levels, and decrease the phosphorus. No big deal.

                Most important: hang on to your faith!!! And know that there are a lot of us out here in the same boat and cheering you on! My best to you both.

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                • #23
                  Hello everyone, I was just told I have stage 3 kidney disease and I'm also a type 2 diabetic. I'm having an cardiac ablation next month because of A-fib. I feel like I've been given a death sentence. I've taken the Davita Kidney Smart class, saw it on line and signed myself up immediately. My PC doctor is getting me a referral to a kidney specialist. I don't mind saying I am scared. I'm not ready to give up yet even though I'm 74.

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