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  • Low Kidney fuction

    Hello my name is Linda.I'm 40 years old.and I'm scared and worried. See last year i had an inlarge right kidney and a 10in kidney stone in it. they had to crush it twice. well recent they tested my kidney fuction and the doctor said it was a low kidney fuction, he is sending me to a kidney specialest on sept 19 (Have to wait that long because of labor day) I read that it can be treated by diet and medication. my problem is I'm just so scared and I worry every day and every hour since my doctor told me. just because of what i'm going through but because i have a handicap brother and its rough on my mom since my dad died. I just don't want to die I want to be here for them, I just wish i never had this problem,what if i can't get my fuction up.I'm sorry i'm just so scared

  • #2
    Re: Low Kidney fuction

    Hello Linda,

    I am sorry about the loss of your father and the difficulties you and your family face. I know waiting to get in to see a specialist can almost seem unbearable and I understand that you are afraid.

    Right off the top of my head, you should avoid NSAIDS as they are hard on the kidneys. There is a good web site that is often provided to help you get started, which I'll paste below. You'll find some excellent information there.

    http://www.kidneyschool.org/

    Be sure and ask your doctor about diet, you can follow this link and print out a diet prescription for your doctor to fill out and that will help you use the other portion of this site to eat renal friendly. If you can get in to see a renal dietitian that would be helpful as well.

    http://www.davita.com/UploadedFiles/...orm-DaVita.pdf

    Do you know what your GFR is or what stage CKD you are in? You'll want to get copies of all you labs as they will be important to monitor you function.

    There are a bunch of great people here and they are all very supportive. I am going to post this now but I want to welcome you and be sure and post any questions/concerns as that is what the forum is for.

    My best to you.
    Create signature while not logged in, edited through forums.davita.com on 08/15/2012 @ 12:53!!!!!

    Comment


    • #3
      Re: Low Kidney fuction

      aw, dolphinlover, I am so sorry that you are feeling so worried right now. I can't say that I didn't worry either; I was a basket case for a while (hey, to the point of getting hemorrhoids because I was so stressed out.) I think you need to keep in mind is that your kidney stone issues for so long probably made your function drop; sounds like you went through a lot with getting a successful crush. So, perhaps some good percentage will return after you start treating your kidneys with more friendly foods that won't be so hard on them. You see, when we eat foods laden with too much phosphorus, too many minerals, too much potassium--those things get trapped in the kidney and are not filtered through. Kind of like a sieve that is clogged up (your kidney parts--the finger like thingys (can't remember their name) is unable to filter what needs to be filtered. So, the kidneys start dying piece by piece (or act like it's dying because of the stress to them.) "Low kidney function" can mean anything to any given doctor.

      There might be a general practitioner who thinks "low kidney function" is 60%, and another who doesn't think it's until 15%, or even lower than that. Case in point, 11 years ago when I was told I had extremely low kidney function by my GP, he asked of his nephrologist friend in NC who said to my GP, "I wouldn't even see her as a patient because she's not low enough." Do you know what my kidney function stage was then? It was a 4!! At that time, there was no such thing as staging kidney disease, but the nephrologist in NC knew my numbers and dismissed the idea that I needed to be referred to a nephrologist in my area. I will have to admit that my GP saw red flags then, and he called his nephrologist friend in NC to ask his opinion. And, that was his opinion. Creatinine was 2.8 and BUN was 32!!

      When I was officially diagnosed two years ago, it was a "big deal!" Neph said, "Stage 4!! You must get on transplant immediately!" And then, he was shocked to find out that 9 years earlier I was tested with nearly the same numbers I had now (two years ago); no change. He scratched his head and said, "This is unusual. You look fit. You act fit. You're not like 95% of my other patients. But, your blood work says you have sick kidneys. You could possibly stay like this for a long while." Funny thing is, for all those nine years, I had been eating horrible, was 50 lbs overweight, and drank Mayfield Dairy dry with at least 5-8oz of milk a day! Once, though, I was told about the possibility of transplant and the seriousness of my disease, I made drastic changes in my diet. I have improved some, so heading in the right direction. There is no guarantee that I'll stay like this for another 11 years, but I'm trying. Being low function that I am, I know I'm more at risk when flu season rolls around, or fighting off some other infection. I'm rarely sick, and I'm thankful to the Good Lord.

      So, my friend, diet is something to consider very seriously. Do what your doctor tells you, but also do your own research on this site and other sites. Try to not feel that you have to learn it all in one full swoop; you're not going to do it. I've encouraged others on this site to do portion control first. Cut in half all your regular foods. By doing this you're reducing the amounts of anything you shouldn't be having and it really helps to lose the weight if you have that to deal with. If you don't, then it would be best to research what is better for you to eat, or avoid, according to your blood work.

      Always ask for a print out of your blood work whenever you have it done/or when it comes in. You're entitled to it. Then whatever is not in an acceptable range, approach ways to improve those numbers by making changes to your diet. Potassium too high? Reduce high potassium foods. You might not have to be off of those foods forever; only until your numbers are back in range and when the doctor gives you the go ahead to introduce those foods again to your diet. This goes for phosporus, sodium, and magnesium--just to name some biggies. If you're diabetic, then that would be another issue for you to contend with.

      So, stay strong, don't fret. Take it one day at a time. Just remember, if you don't know what to eat, just eat half of what you normally would until you begin to wrap your mind around putting together some recipes that you think you can enjoy. We all complain about how tasteless food is now to us, but it doesn't have to be that way.

      Best wishes to you, Gal! You'll be okay!

      PS:
      Don't skip meals because this then puts you at risk for gall bladder trouble. The gall bladder needs food going through it regularly to keep the bile flowing. Skipping meals invites gall stones.
      Stage 4 Chronic Kidney Disease, 17% renal function, 11 years
      *Non diabetic *Non dialysis
      High Blood Pressure, controlled


      "Never be afraid to trust an unknown future to a known God."
      ~Corrie ten Boom

      Comment


      • #4
        Re: Low Kidney fuction

        Dolphinlover,

        I know that the unknown is SO scary. I am on a constant roller coaster and sometimes I wish I could get off but I just take a big breath and do a lot of praying. Through all this craziness I have found a peace I would of never thought I could have. When I woke up from 4 days in a coma and grand mal seizures, I was so scared and when it took me a few days to just sit up in bed and even a few more days later to walk. I have found that there is a happiness in giving everything to God. When I decided to really give it to God (and not just say it), I found that I don't worry too much about it and I know he will take care of everything, I just have to show up and follow the drs instructions/diet and it will be okay. My transplant team gave me a number so I could see where I was on the list and I told them that they (transplant team) would tell me when I needed to come down to Nashville for the surgery and they said of course we will and I said that is all I need. I don't want to live my life waiting for things to happen, so when they call me I will go and hopefully everything will work out the way I want it.... I have found over the last 3 years I have gotten closer to God and I am scared, happy, excited, confused, and still on the roller coaster but it has gotten a little slower.

        Hope this helps!!! I am praying for you and here is a BIG HUG for you.

        Take care,
        Patty
        Patty Lewis
        Stage 5 CKD
        PD Dialysis since Dec 2009
        On transplant list July 15, 2011
        patty.lewis 19@ yahoo.com

        Comment


        • #5
          Re: Low Kidney fuction

          Hi Linda,

          First of all welcome! I am sorry you have to have found this forum and have kidney problems like the rest of us. I am very sorry to hear about your dad and the situation your in.

          I want you to know that like what the others say diet of course is a huge help. I am at 9% kidney function and still healthy not needing dialysis as of yet. That is not to say I could need it tomorrow and I am going through some of my own concerns right now -- mainly that i'm trying to get transplant and they found dermoid cyst in my right ovary and also been to mammogram and ultrasound about a cyst they found in my right breast too. I am 41. and I am waiting to hear from specialists on what to do next.

          I am like Patty in that I have found that my belief in God is what really gets me through sometimes. I believe in prayer and all these people here on this forum are your friends and there support to me is like an answered prayer. We are all in this in some way together and we all give and get support. I am glad for you that you have stumbled into this community.

          Wishing you the best!

          Lana
          TRANSPLANT SCHEDULED NOV 14, 2011 THANKS TO MY AMAZING HUSBAND!!!
          Today oct 11th.Still no dialysis -and at 9% GFR,
          think i'm gonna make it!!!

          Diagnosed 2005 CKD3.
          Benign Glomulersclerosis- not hereditary, no known cause
          Non-diabetic, normal BP
          Hospital error 2008 caused me to plummet straight to CKD5
          07/2011 -CKD 5 -GFR 11 - Not on Dialysis
          Awaiting transplant, doing eval, hoping for live donor match

          Comment


          • #6
            Re: Low Kidney fuction

            Thank you all so very much,It kind of eases the worry about my kidney. I'm just greatful to have came here,amoung my new friends atleast I'm not alone on my journey.I'm determin to overcome this,I'll do anything. I hate to admit it but I'm over weight ,but when i went to the doctor last I lost 13lbs I've been exceriseing since May 2011 I try to do it every day. I haven't drank any soda since acouple days, but is diet soda a no no? like i said i'm afraid to drink anything except water and my vfushion to get my vegtables (I hate veggies) and fruit.
            Thank you I have faith for the link you gave me,I'll be sure to check it out tomorrow since its almost midnight here
            I am b lessedI have an appointment at the doctor tomorrow i made it on 9/30 because i think i have a uti so when i go .I'll ask for a report of my blood work that they did so i know where i stand
            I have faithwhat is Nsaids? you mention that,sorry i'm new to this.I am blessedI'm going to follow what you said about cutting 1/2 my portion down on what I eat until I know what and what i can not eat.Patty_Lewis I look up to you on your strenight on how you cope with things.I so wish I can be as brave and you and everyone else here is. I'll be praying for Lana B& your transplant to come soon
            until tomorrow.Thank you all so much ,God bless Linda

            Comment


            • #7
              Re: Low Kidney fuction

              I just got back from the doctor she told me it wasn't nothing to worry about she said it was renel moderate is that a good sign she told me diet soda was a no can do and to subsatute it with gaderade g2 drink lots of fluid no salt ,no caffene i also have a bladder infection

              Comment


              • #8
                Re: Low Kidney fuction

                If you've been put on antibiotics, then eat some live culture yogurt or drink a little buttermilk to put good bacteria back into your system; you don't want to end up with another infection, such as thrush, or a yeast infection.

                To answer your question about what are NSAIDS:
                Non-steroidal anti-inflammatory drug
                From Wikipedia, the free encyclopedia
                (Redirected from NSAIDS)


                Coated 200 mg Ibuprofen tablets, a common NSAID
                Nonsteroidal anti-inflammatory drugs, usually abbreviated to NSAIDs or NAIDs, but also referred to as nonsteroidal anti-inflammatory agents/analgesics (NSAIAs) or nonsteroidal Anti-inflammatory medicines (NSAIMs), are drugs with analgesic and antipyretic (fever-reducing) effects and which have, in higher doses, anti-inflammatory effects.
                The term "nonsteroidal" is used to distinguish these drugs from steroids, which, among a broad range of other effects, have a similar eicosanoid-depressing, anti-inflammatory action. As analgesics, NSAIDs are unusual in that they are non-narcotic.
                The most prominent members of this group of drugs are aspirin, ibuprofen, and naproxen, all of which are available over the counter in many areas.[1][2]
                Stage 4 Chronic Kidney Disease, 17% renal function, 11 years
                *Non diabetic *Non dialysis
                High Blood Pressure, controlled


                "Never be afraid to trust an unknown future to a known God."
                ~Corrie ten Boom

                Comment


                • #9
                  Re: Low Kidney fuction

                  what kind of medication can you use for headaches?

                  Comment


                  • #10
                    Re: Low Kidney fuction

                    Tylenol.

                    Also, rarely I ever have a headache but if I do and can be around a bathtub, I soak my feet in the hottest water I can stand and not scald myself. That directs the blood to the feet and away from the head. Try that first before taking anything. (This is something I heard of a long time ago for those who have migraines.)
                    Stage 4 Chronic Kidney Disease, 17% renal function, 11 years
                    *Non diabetic *Non dialysis
                    High Blood Pressure, controlled


                    "Never be afraid to trust an unknown future to a known God."
                    ~Corrie ten Boom

                    Comment


                    • #11
                      Re: Low Kidney fuction

                      Hi dolphinlover, I get alot of headaches and use tylenol if I can find it anymore. Many stores have not restocked it because of the recall some time ago. I was told that most headaches are from stress and I believe it. If you find you have tight muscles in your shoulders and neck, it's probably stress. Even though heat or a hot shower feels good, an ice pack around your neck might work better. A nurse in the hospital shared this tip with me. About 1 or 2 times a year I get a migraine. The only thing that relieves that is 1/2 of an Exedrin aspirin. I know some people have to go to the ER over migraines.

                      I Am Blessed, If your diabetic, you do not want excessive heat on your skin for too long. A lesson my mother and I learned with her using the heating pad. The bruising it caused was terrible.

                      Toni
                      May you always have Love to share, Health to spare, and Friends that care


                      Acute Kidney Function Loss 12/07 - GFR 39
                      Current GFR 46 - Stage 3 - Controlled HBP

                      Comment


                      • #12
                        Re: Low Kidney fuction

                        thank you for answering my question. I'm really hopeing i can do this protein diet its hard

                        Comment


                        • #13
                          Re: Low Kidney fuction

                          Please be sure the read the instructions on your medications before adding yogurt to your diet. In fact many specifically say NOT TO USE dairy products within one to two hours before and after. Yogurt will reintroduce "good" bacteria back into your digestive system but should be done after you have finished the antibiotics.

                          Hope you are feeling better soon,
                          Mary

                          Comment


                          • #14
                            Re: Low Kidney fuction

                            Hello Linda,

                            You have come to the right site. There are many wonderful and kind people who have kidney difficulties who can understand what you are now going through. I can understand your frustration when for the first time finding out you have kidney problems and have to see a nephrologist. At first it is very scary and depressing experience. You feel all alone and ask the question why this happening to me is. The truth is that there are hundreds of thousands of people who have kidney problems and disease. I too was at first depressed and very scared with a GRF of 39. You need to find out your lab work. This will give you a base line to monitor your kidney function. Second, you need to get on the right kidney diet. Diet is essential for the health of your kidneys. And third, I would recommend you find out all that you can about you kidney disease and embark on an education. The more you know about kidney disease the better you will be in maintaining your kidney function. It is not the end of the world and people this with kidney disease can live a healthy and good life.

                            God bless,

                            Augustus

                            Comment


                            • #15
                              Re: Low Kidney fuction

                              Originally posted by Ladybug7
                              Please be sure the read the instructions on your medications before adding yogurt to your diet. In fact many specifically say NOT TO USE dairy products within one to two hours before and after. Yogurt will reintroduce "good" bacteria back into your digestive system but should be done after you have finished the antibiotics.

                              Hope you are feeling better soon,
                              Mary
                              THank you so much for the healthy tip it means alot

                              Comment

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