Announcement

Collapse
No announcement yet.

Big drop in egfr

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Big drop in egfr

    Hi, I'm new here and very worried.
    In August my egfr was 72 but is now 56, I have bubbles in my urine and have to get up about 3 times each night to go for a wee. I always have blood and protein in urine. I am waiting to see a kidney specialist. What could cause my egfr to drop so quickly in a month? I don't have diabetes or high blood pressure, I am 44 and fit and healthy otherwise.
    Any advice would be greatly appreciated.

  • #2
    Oh you are not alone with the big Egfr drop. I too have recently experienced that. I need help and support too. I know how you feel - worried. I was diagnosed with CKD in April this year and GFr was 40 then, by June it went up to 43, but I saw my nephrologist (kidney specialist) on Monday again and my GFR went down to 26. I went from stage 3 to stage 4. I took Prednisone and that possibly did go well, and I did follow my renal diet, but it must have been some natural remedies that caused my GFR to drop so quickly in so little time. I have chronic kidney disease due to glomerulonephritis. I have good blood pressure, take blood pressure pills because the high blood pressure was caused by kidney disease in me and not chronic kidney disease caused by high blood pressure. Did you follow a special diet? Maybe some kidney damage or not following a kidney diet could cause a decrease in egfr so quickly. I don't have AKI (acute kidney injury), in which kidney function decreases suddenly but it is easily curable with complete recovery of kidney function. I also have no diabetes. My nephrologist could give me new pills but the problem is that I could lose my defenses in my immune system. My kidney specialist is considering for me to need a kidney transplant in a year or two. In my nephrology (study of kidneys) center people aren't in kidney transplant lists until GFr is lower than 20. However, I am 24 years old and the only one in my family with CKD. The good thing, though, is how well my family supports me. I see my nephrologist again in December and am afraid of soon going to need dialysis or a transplant. I have bubbly urine too and this is a common sign of kidney disease. I know there are people worse off than me (and you) and do know that CKD is not the end of the world but why such a huge drop in EGFR quickly? I cope with kidney disease easily and know that I am not alone with it. In general CKD patients are in limiting potassium, phosphorous and protein, like me. I did follow that from June to this past Monday but my kidney specialist said that the medicine she or some natural remedies doctor prescribed me was something my kidneys weren't responding to. Stage 4 is not dialysis yet, dialysis is stage 5. I was also diagnosed with high protein in the urine when I was 12, maybe then I had CKD too. I need help, too, you're not alone. Let's see who else can help and perhaps I can be in not taking those same natural remedies again to raise my GFR again, i will see my nephrologist again in December for seeing what my Egfr is by then, it can go back up too.

    Comment


    • #3
      Originally posted by sylviaal View Post
      Hi, I'm new here and very worried.
      In August my egfr was 72 but is now 56, I have bubbles in my urine and have to get up about 3 times each night to go for a wee. I always have blood and protein in urine. I am waiting to see a kidney specialist. What could cause my egfr to drop so quickly in a month? I don't have diabetes or high blood pressure, I am 44 and fit and healthy otherwise.
      Any advice would be greatly appreciated.
      It happens. When mine was first found it was 56. Then it dropped to 36 in a couple months. Now it has stablized for the moment. I didn't have high blood pressure until kidney disease and I don't have diabetes. All my numbers are in range except for my bun and creatinine. Are you eating a kidney friendly diet? If not it could help you regain some of your GFR. Davita has lists for kidney friendly foods. Go by those. Don't eat potatoes, (root vegetables) Don't drink milk or eat milk products cheese etc. (rice milk tastes fairly good and is okay). Don't eat bananas. At least until you find out what you can eat and how to count it. Also don't get dehydrated. Drink at least 64 ounces of water a day. (things that have liquid in it counts) Read all labels of foods. Don't eat the foods which have added phophorus or potassium. This is most pre-packaged foods. Eat fresh and make it yourself. Also eat less meat protein if you eat a lot. It is hard on the kidneys. Vegitarian is better if you like to do that. Once you know your numbers well it will get easier. You will learn more and more. Just read all that you can. If you have any questions feel free to message me. Take Care.

      Comment


      • #4
        Hi, sylviaal! I totally agree with DebbyRig except for one thing: CUT OUT THE SALT!!! You might not have high blood pressure now, but CKD can cause it, plus the American diet is much too high in salt. Learn to use spices and herbs to flavor foods instead. Mrs. Dash's salt-free combinations and McCormick's Perfect Pinch salt-free combinations are great. I have done without table salt for many years, and have found that food actually tastes better without it, because you get all the natural flavor. I also highly recommend a slow cooker (using the fabulous recipes from davita.com, of course!) so you can make 4 or more meals at a time. You can google herbs and spices and get a chart that tells what each spice/herb is, what it's from, and how to use it. It's priceless! I had never used Tarragon before, for instance, and now I won't make Chicken Noodle (or Rice) Soup or cooked carrots without Tarragon. Yum! By the way, if you keep a strict kidney diet, be sure you have regular blood tests to be sure you aren't getting too low in anything, such as potassium. I was overwhelmed with the diet at first, but eventually found it had become second nature to choose the right foods. I also learned to focus on what I COULD eat, not what I COULDN'T eat. Made a huge difference. Blessings on you! mary (poozy1238)

        Comment

        Working...
        X