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  • Hi! I am new here!

    Hello everyone.

    I just found this forum. I have been having trouble posting here. No curser in text box, does anyone know what I am doing wrong? I really would like to become active here. I am getting a lot of headaches and I find the session draining!

    Thanks,

    Clay

  • #2
    Originally posted by jclay2016 View Post
    Hello everyone.

    I just found this forum. I have been having trouble posting here. No curser in text box, does anyone know what I am doing wrong? I really would like to become active here. I am getting a lot of headaches and I find the session draining!

    Thanks,

    Clay
    Hi jclay2016, welcome to myDaVita! It looks like you figured out how to get a forum post up, do you have any additional questions? Feel free to browse the forums to connect with others who may share a story to kidney disease with you.

    I hope you have a great weekend!

    Comment


    • #3
      I been in dialysis for while and been doing good ups and downs but I embrace it it's hard but is the option we have

      Comment


      • #4
        Originally posted by alexdj1984 View Post
        I been in dialysis for while and been doing good ups and downs but I embrace it it's hard but is the option we have
        I think you have the right attitude. Good For you. I am not on dialysis yet. I am stage 3b. I hope I can have a good attitude when and if that time comes.

        Comment


        • #5
          wish I could help you but I am new here too trying to learn how to speak with people in here

          Comment


          • #6
            IVE BEEN GOING TO DIALYSIS FOR A FEW MONTHS NOW. FOUND OUT A COUPLE OF MONTHS AGO THAT I WOULD HAVE TO DO IT, BUT PUT IT OFF AS LONG AS I COULD. FINALLY WENT TO HAVE MY FISTULA PUT IN, NEITHER THE FIRST OR SECOND ONE WORKED, SO NOW I HAVE WHAT I CALL MY 'PORT' IN MY NECK, IT GOES DIRECTLY INTO MY HEART, SO HAVE TO BE CAREFUL WITH EVERYONE AROUND ME. THAT PART REALLY SUCKS ALOT, BUT NO OTHER OPTION I GUESS. IF YA JUST NEED TO TALK OR CRY, YELL OR SHOUT, I CAN TAKE IT. NO I AM NOT YELLING, IM LOOSING MY SITE TO THE DIABETES, SO CAPITAL LETTERS ARE @ WHAT I CAN SEE, THAT OR PUT MY PUTER SCREEN ON 200 SETTING TO SEE STUFF. AT ANY RATE, IM HERE LATE AT NITE AND UP EARLY TAKING MEDS N SHOTS, SO JUST DROP ME A LINE IF YA LIKE.

            LATERZ,
            VEE

            Comment


            • #7
              HI VEE!

              I'M UP LATE SOMETIMES TOO. MY HUSBAND IS STAGE 5 AND WILL SEE THE DOCTOR NEXT WEEK TO FIGURE OUT WHICH ARM IS BETTER.
              HE ALSO HAS DIABETES AS WELL AS BEGINNING STAGE ALZHIMERS. HE IS HAVING A ROUGH TIME BUT WE ARE HOPING THAT ONCE HE GETS SETTLED ON DIALYSIS THAT OUR LIVES MIGHT CALM DOWN A BIT. I'VE JUST STARTED TO READ EVERYTHING I CAN GET MY HANDS ON TO KEEP HIM OFF OF HARMFUL FOOD. THE PROBLEM I'M HAVING IS HE IS HUNGRY ALL THE TIME. CAN ANYONE TELL ME WHY HE'S HUNGRY AND WHAT I CAN DO TO STOP IT?

              THANKS. (NOT SHOUTING, JUST WANTED VEE TO BE ABLE TO READ MY POST. I HAVE PROBLEMS SEEING AS WELL.)

              Comment


              • #8
                I started dyalysis this week . I have the port in my neck too . It really sucks not being able to get it wet . I also sport a broken leg .broken in 4 places . So i cant shower at all . Just sponge bath . Im in alot of pain because of my leg and lack of being able to take pain pills . I just discovered this site today but seems i will ne here alot

                Comment


                • #9
                  [QUOTE=MIDNITE1;n102938]IVE BEEN GOING TO DIALYSIS FOR A FEW MONTHS NOW. FOUND OUT A COUPLE OF MONTHS AGO THAT I WOULD HAVE TO DO IT, BUT PUT IT OFF AS LONG AS I COULD. FINALLY WENT TO HAVE MY FISTULA PUT IN, NEITHER THE FIRST OR SECOND ONE WORKED, SO NOW I HAVE WHAT I CALL MY 'PORT' IN MY NECK, IT GOES DIRECTLY INTO MY HEART, SO HAVE TO BE CAREFUL WITH EVERYONE AROUND ME. THAT PART REALLY SUCKS ALOT, BUT NO OTHER OPTION I GUESS. IF YA JUST NEED TO TALK OR CRY, YELL OR SHOUT, I CAN TAKE IT. NO I AM NOT YELLING, IM LOOSING MY SITE TO THE DIABETES, SO CAPITAL LETTERS ARE @ WHAT I CAN SEE, THAT OR PUT MY PUTER SCREEN ON 200 SETTING TO SEE STUFF. AT ANY RATE, IM HERE LATE AT NITE AND UP EARLY TAKING MEDS N SHOTS, SO JUST DROP ME A LINE IF YA LIKE.

                  LATERZ,
                  VEE[/QU
                  Hi there, I was having trouble with seeing with my eyes also, I got them checked and found out i needed surgery in both of my eyes.I got surgery now i can see better.

                  Comment


                  • #10
                    Thank you all for sharing your stories. I am a "newby" too; first time one here. I am in stage 4 of ckd, so haven't started dialysis just yet, don't know when that will happen. I have a wonderful nephrologist. I noticed that many of you also have diabetes, is that part of the kidney disease? I am not diabetic, but I did have throat cancer a few years ago and can't talk, so I enjoy it when I can type my thoughts. I'd love to hear from some of you--or all--but as of this moment I am unable to retrieve my messages. I hope the support people get back to me tomorrow! Cpi3per1

                    Comment


                    • #11
                      Hi I’m new here. I have my fistula already in my arm for about 5 weeks now. Waiting on it to heal so it can be used. I to have the temp port in my neck and I have finished my 6th dialysis treatment today. I was feeling prettty good on my earlier treatments but I feel so run down tonight. My legs are so sluggish and I feel exhausted when I go upstairs. Is this norm they said they pulled 6 - 8 lbs off me today in 4 hrs. I appreciate any feedback because this is all so new to me. Thanks

                      Comment


                      • #12
                        Hi everyone...I am new here as well. I have stage 4 CKD. The fistula in my arm is ready and I start dialysis tomorrow and I am rather anxious about it. Im glad to have found these forums where there are others to share their experiences. ill be here as often as i can.

                        Comment


                        • #13
                          Originally posted by alexdj1984 View Post
                          I been in dialysis for while and been doing good ups and downs but I embrace it it's hard but is the option we have
                          I just started with dialysis and yea, there's lots of ups and downs. It's tough to sit here and think about how long I'll be doing this, but maybe just focusing on each day is easier then thinking about the long term. I don't know.

                          Comment


                          • #14
                            Hi, I am new to this dialysis thing too. Had my temp port and fistula put in on the 19th of Oct. and have had 10 dialysis treatments so far. Boy do I feel better! but I do get depressed thinking that this will have to be my way of life for the rest of my life. 3 times a week for 4 hours is a long time to lay there and think. Looking forward to hearing from others their thoughts and feelings and how they manage to cope.

                            Comment


                            • #15
                              I used to get bad headache and cramps too. But once they suggested taking off 1/2liter less fluid it was much better. You said sessions were draining. Time will help with that. At least it did for me. Im fairly new too. 7 months...

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