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  • Sundancekid69
    replied
    I am new to PD and have a problem draining. It takes over a hour each season and most of the time for not drain completely.

    Leave a comment:


  • JasonEdwards38
    replied
    One thing you'll realize from reading over the posts is that PD affects everyone a bit differently. I'm not a big person (140 lbs) so I use a smaller bag (1500ml) which may be an option if you're uncomfortable with the 2litre bag. But your doctor has the best advice on that one. As far as being bloated..yup, that's gonna happen when you pour 2 litres of liquid into your abdomen! Just learn to love those stretchy pants.

    Leave a comment:


  • Jessica01
    replied
    Originally posted by goudrea View Post
    Doctor says PD is better for an active traveller.
    Right now the dialysis is 'catheter' hemo...not yet ready for such an awful diagnosis. It takes time to adapt and the choice between PD and HD is quite difficult to take.
    Any suggestions.
    Can't imagine science hasn't évolved and it's still necessary to have a huge belly. Boy we go on the moon!

    thanks
    Here's basically an in-dept education to help you make and informed choice. Personally, as someone who has experienced in-center hemodialysis from late August 2011-early May 2013 I suggest PD. By my second day on PD I had much more energy and much less pain. I am young with a strong constitution yet I had begun to deteriorate on in-center hemodialysis and now since I finally made the decision to switch I feel a lot better. I have yet to try the cycler aka CCPD, since I'm still pretty new to PD. My center always likes to start the patients off on CAPD aka manual PD. I still doing the manuals until a little later this month. However, it seems many patients do well on the cycler too. PD doesnt seem to be as hard on the body and is more natural, more like what your kidneys would be doing if they were working correctly. But listen to your nurses when you get trained should you chose this route and be clean to guard against infection, since thats the biggest risk with PD. Even if you do PD its still a good idea to get a hemodialysis fistula or graft, unless both surgeries wouldnt be worth it, say if you will be gettting a transplant very, very soon. The reason for it being a good idea is because if something happened to your PD catheter then you'd still have a back-up (and if say you got a hemo-catheter placed real quickly in an emergency, without the time needed to wait for a graft or fistula to heal, the hemo-catheters are particulary infection prone, much more than the PD ones. They are constantly getting infected!). Another option is home hemodialysis and many centers now offer it. It is more gentle than in-center hemodialysis. However, you have to devote usually 3 hours at a time 6-7 days a week to being on the machine (but in the comfort of your home at least). You will need to get button hole technique (may wish to google it) done on your fistula, if you get one of those. A down-side is you will have to have an assistant, like a family member or friend, get trained on it and dedicate themselves to being there with you each time you are on the home-hemo, incase of emergency. With PD usually about the first month or so can be difficult because every 4 hours or so you have to do a fluid exchange, after around that amount of time you can get a machine called the cycler. You can hook up to the cycler after a little set up each night while you sleep and it will do the exchanges for you automatically in the comfort of your home, no assistant required. The infection risk is greater than hemodialysis using a graft or especially a fistula, but most infections can be avoided, and should one occur you will be trained on what to do right away and what to watch for by your nurses. From the point of view of a person whose had a blood stream infection due to an infected hemodialysis catheter I would say if you do get infected and attend to the infection right away-theres some good medications available. ~Best to you with all of this~

    Leave a comment:


  • Jessica01
    replied
    Originally posted by goudrea View Post
    Doctor says PD is better for an active traveller.
    Right now the dialysis is 'catheter' hemo...not yet ready for such an awful diagnosis. It takes time to adapt and the choice between PD and HD is quite difficult to take.
    Any suggestions.
    Can't imagine science hasn't évolved and it's still necessary to have a huge belly. Boy we go on the moon!

    thanks
    Here's basically a full education to help you make an informed decision. Personally, as someone who has experienced in-center hemodialysis from late August 2011-early May 2013 I suggest PD. By my second day on PD I had much more energy and much less pain. I am young with a strong constitution yet I had begun to deteriorate on in-center hemodialysis and now since I finally made the decision to switch I feel a lot better. I have yet to try the cycler aka CCPD, since I'm still pretty new to PD. My center always likes to start the patients off on CAPD aka manual PD. I still doing the manuals until a little later this month. However, it seems many patients do well on the cycler too. PD doesnt seem to be as hard on the body and is more natural, more like what your kidneys would be doing if they were working correctly. But listen to your nurses when you get trained should you chose this route and be clean to guard against infection, since thats the biggest risk with PD. Even if you do PD its still a good idea to get a hemodialysis fistula or graft, unless both surgeries wouldnt be worth it, say if you will be gettting a transplant very, very soon. The reason for it being a good idea is because if something happened to your PD catheter then you'd still have a back-up (and if say you got a hemo-catheter placed real quickly in an emergency, without the time needed to wait for a graft or fistula to heal, the hemo-catheters are particulary infection prone, much more than the PD ones. They are constantly getting infected!). Another option is home hemodialysis and many centers now offer it. It is more gentle than in-center hemodialysis. However, you have to devote usually 3 hours at a time 6-7 days a week to being on the machine (but in the comfort of your home at least). You will need to get button hole technique (may wish to google it) done on your fistula, if you get one of those. A down-side is you will have to have an assistant, like a family member or friend, get trained on it and dedicate themselves to being there with you each time you are on the home-hemo, incase of emergency. With PD usually about the first month or so can be difficult because every 4 hours or so you have to do a fluid exchange, after around that amount of time you can get a machine called the cycler. You can hook up to the cycler after a little set up each night while you sleep and it will do the exchanges for you automatically in the comfort of your home, no assistant required. The infection risk is greater than hemodialysis using a graft or especially a fistula, but most infections can be avoided, and should one occur you will be trained on what to do right away and what to watch for by your nurses. From the point of view of a person whose had a blood stream infection due to an infected hemodialysis catheter I would say if you do get infected and attend to the infection right away-theres some good medications available. ~Best to you with all of this~

    Leave a comment:


  • Marina
    replied
    Originally posted by toosweet View Post
    Hello, i started home dialysis pd 10 months ago and since i am a diabetic my sugars soared sky high so my endocrinologist started me on another insulin and i have gained 60 pounds from all the extra insulin. I am miserable and uncomfortable because of this. I was told it was impossible to lose weight and tat i would just have to learn to live with it. I am thinking of switching to hemodyalisis instead of pd to try and lose weight this way since hemo is not full of sugar. Any suggestions from anyone ...i am really losing it.
    Hi Toosweet,
    I'm so sorry you're getting frustrating and thinking of doing Hemo.
    Has your Endo checked your thyroid (I'm sure he/she has since that's their specialty.
    I used Humolog and Lantus, but didn't have the weight gain problem at all.

    Are you less active now that you're on PD?

    There is one PD solution many centers are using now. The solution is called Extraneal (icodextrin).
    This solution is used for patients who are high transporters and/or diabetics.
    Extraneal is made from a starch instead of Dextrose, it doesn't increase BG's like regular PD solution does.
    You might want to discuss this solution with Neph and PD nurse.

    Take care

    Leave a comment:


  • toosweet
    replied
    Hello, i started home dialysis pd 10 months ago and since i am a diabetic my sugars soared sky high so my endocrinologist started me on another insulin and i have gained 60 pounds from all the extra insulin. I am miserable and uncomfortable because of this. I was told it was impossible to lose weight and tat i would just have to learn to live with it. I am thinking of switching to hemodyalisis instead of pd to try and lose weight this way since hemo is not full of sugar. Any suggestions from anyone ...i am really losing it.

    Leave a comment:


  • ronkolt
    replied
    i too am experiencing this bloating... i have only been doing the home treatments for just over a week.. and for a few days my stomach w3as still flat when i drained.. and even with 2500mL it wasnt nearly as swollen as its been the past 5 days... they did zrays and finally told me that it is just my cavity is stretching... i am only using 1500mL now.. but i can hardly even eat now...

    Leave a comment:


  • davpro
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Not sure if there are any trials planned for Canada yet but I do know that at least one of my hephrologists is aware of it and follows the current trials. From my converstions with him I feel optimistic that the cost savings as well as improved level of dialysis will almost certainly mandate its usage.

    Leave a comment:


  • angieskidney
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Originally posted by jeffmoore View Post
    Angie, I read one of your post, and you stated that you are currently on hemo, I was under the impression that you still have your second transplant. Am I reading this correctly.

    Glo
    Haha that would explain why people keep getting confused. Yes I am on transplant. No I am not on dialysis. That posted was from 08-12-2006, 07:22 AM

    At that time I was still on hemo dialysis. I was on it until Nov 2007 when the transplant I got on Oct 30th 2007 started working enough to stop dialysis.

    Originally posted by davpro View Post
    Fellow PD'ers... it looks as though there may be hope on the horizon. Take a look at the new AWAK system currently being trialed in the US and Singapore. The most recent version relies on tidal PD and works up to 4 times more efficiently than the current modalities. A big plus is that it works with just 750 ml total fluid (500 dwell with 250 tidal) so it should help with the big tummey issue. My nephrologist is following this closely and told me that if the intial results hold up in trials then it will be a huge improvement over current modalities. It should be available by 2011.
    http://www.awak.com/
    Ah the AWAK! I have heard a lot about that over the last year but didn't know when it would actually be available! Is that just in the USA like NxStage was for the longest time?

    Leave a comment:


  • jeffmoore
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Originally posted by babydoll View Post
    Thanks for the reply....What can I say? I mean for example...it was christmas 2 days ago and everyone was happy...talking about going on holidays to Egypt, London etc etc...busy drinking all nite having fun and I just looked at them and thought...who do I complain to reg. my concerns? I wanna go back to London too as that's my fave. place and also want to go to Egypt, etc etc as my goal for life was travelling the world and now am just stuck at home....doing dialysis every 4 hrs. I used to go shopping all day....now I have to rush back do dialysis and go back. I can't even travel far to do shopping...just local. Am also a diabetic so my restrictions contradict with each other and sometimes it gets very hard. I see happy people around me and I just miss being happy. I'm so very sad nowadays....it's killing me.
    Babydoll, You didn't say how long you have been on PD. Have you considered the cycler at night treatment. It is done usually ten hrs. at night, but there are some like myself, that has a one time manual exchange during the day. If you are a traveler, you can travel with your cycler, I have. I went to New York a few years ago, and just got back from Phoenix a few weeks ago. When you travel, and have to stay in a hotel, just be cautious of the sanitation of the room, like if the bathroom is close enough to your bed, where you won't have to connect and disconnect to go to the bathroom. I have a rule when it comes to being on the cycler, at home I have accomodated my machine to be stationed as close to the bathroom as possible, so I don't have to connect and disconnect at all during the night, this way I could have less risk of getting peritonitits. Maybe you could discuss this with your PD nurse at your unit. Keep me posted on what you decide, and like I said hit me up anytime with your concerns. Feel free to pick my brains anytime (LOL). And Please think positive, there are solutions to everything. I hope to hear from you real soon.

    Glo

    Leave a comment:


  • davpro
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Fellow PD'ers... it looks as though there may be hope on the horizon. Take a look at the new AWAK system currently being trialed in the US and Singapore. The most recent version relies on tidal PD and works up to 4 times more efficiently than the current modalities. A big plus is that it works with just 750 ml total fluid (500 dwell with 250 tidal) so it should help with the big tummey issue. My nephrologist is following this closely and told me that if the intial results hold up in trials then it will be a huge improvement over current modalities. It should be available by 2011.
    http://www.awak.com/

    Leave a comment:


  • babydoll
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Originally posted by jeffmoore View Post
    Babydoll, Don't fret!, We all had a first time, and there is an adjustment to make, first have you just started PD? As far as what you are experiencing, I had a very difficult adjustment in the beginning. I was having trouble sleeping, when I first started I use to sleep in a recliner, but that soon discouraged me to the point that I wasn't even sleeping at night, I then decided to sleep in my bed, and my first experience with pain, was when I would fill, this went on for a few weeks, until my PD nurse, discovered that my intitial drain had to be adjusted, because when I would intitially drain, it would completely drain all the dwelled solution, and this would leave my tubing dangling in my abodomen, and that is where the pain comes from when I would fill, so she changed my initital drain to leave a little in, and also change my prescription to something called TIDAL, and this has help a great deal, I no longer have those cramps, but about five years ago, I developed a hernia, and the 1000 that I was dwelling during the day, was very taxing on my body, I could hardly breathe at times, so they changed my last fill to 800, so that it would relieve the pressure on my stomach, and I could tolerate the amount during the day. Babydoll, maybe you need to discuss your concerns with your PD nurse, because it sounds like you truly need to have some relief from your discomfort that you are experiencing. I hope this can be remedied real soon, and you could life productively with PD. I am in my 10th year of PD as we speak. I was previously on Hemo for ten years. Good Luck. And please don't give up. This is a very unique life that we all have to live, and there is no reason to think that it is the end. Hit me up anytime, if you have any concerns or uncertaintiies with peritoneal dialysis or even this very complex renal diet.

    Glo
    Thanks for the reply....What can I say? I mean for example...it was christmas 2 days ago and everyone was happy...talking about going on holidays to Egypt, London etc etc...busy drinking all nite having fun and I just looked at them and thought...who do I complain to reg. my concerns? I wanna go back to London too as that's my fave. place and also want to go to Egypt, etc etc as my goal for life was travelling the world and now am just stuck at home....doing dialysis every 4 hrs. I used to go shopping all day....now I have to rush back do dialysis and go back. I can't even travel far to do shopping...just local. Am also a diabetic so my restrictions contradict with each other and sometimes it gets very hard. I see happy people around me and I just miss being happy. I'm so very sad nowadays....it's killing me.

    Leave a comment:


  • jeffmoore
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Originally posted by angieskidney View Post
    I have been on PD for 4 years (2001 to 2005 ... but now I am on hemo due to Peritonitis .. man that hurts!!) and I just wanted to say that people thought I was pregnant! Don't worry .. your stomach will go back down once you are off PD. Mine did .. even after 4 years of it non-stop (I never went dry like some people do). But I am lucky that I have such a long body (sadly though .. short legs .. but at least my body benefitted me when it came to PD )
    Angie, I read one of your post, and you stated that you are currently on hemo, I was under the impression that you still have your second transplant. Am I reading this correctly.

    Glo

    Leave a comment:


  • jeffmoore
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    Babydoll, Don't fret!, We all had a first time, and there is an adjustment to make, first have you just started PD? As far as what you are experiencing, I had a very difficult adjustment in the beginning. I was having trouble sleeping, when I first started I use to sleep in a recliner, but that soon discouraged me to the point that I wasn't even sleeping at night, I then decided to sleep in my bed, and my first experience with pain, was when I would fill, this went on for a few weeks, until my PD nurse, discovered that my intitial drain had to be adjusted, because when I would intitially drain, it would completely drain all the dwelled solution, and this would leave my tubing dangling in my abodomen, and that is where the pain comes from when I would fill, so she changed my initital drain to leave a little in, and also change my prescription to something called TIDAL, and this has help a great deal, I no longer have those cramps, but about five years ago, I developed a hernia, and the 1000 that I was dwelling during the day, was very taxing on my body, I could hardly breathe at times, so they changed my last fill to 800, so that it would relieve the pressure on my stomach, and I could tolerate the amount during the day. Babydoll, maybe you need to discuss your concerns with your PD nurse, because it sounds like you truly need to have some relief from your discomfort that you are experiencing. I hope this can be remedied real soon, and you could life productively with PD. I am in my 10th year of PD as we speak. I was previously on Hemo for ten years. Good Luck. And please don't give up. This is a very unique life that we all have to live, and there is no reason to think that it is the end. Hit me up anytime, if you have any concerns or uncertaintiies with peritoneal dialysis or even this very complex renal diet.

    Glo

    Leave a comment:


  • babydoll
    replied
    Re: Peritoneal Dialysis And Stomach Bloating

    My periods stopped right after da cathether was inserted. Now my tummy is so damn bloated that I can hardly breath. I cry when night falls as I can't sleep. I'm sitting in my car in the garage all night while my family is sleeping peacefully in the house. I sit in the car as that's the only place it feels ok. Sitting on da lounge gives me cramps and extreme pain. The itching can kill. I have bruises and blood everywhere on my body. All my stylish high heeled shoes are collecting dust. I can only wear thongs now. But the worst is that I can barely walk. I just can't walk any more. No energy to do so. Lifting a leg is like lifting 10 kilos. I can't breath and it's getting worse. I pray daily now just asking god to call me to him as I can't take it anymore. I have had enuff. Can't bear the pain .....:-((

    Leave a comment:

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