Need some words of wisdom
HI ALL its my first post here, my fiance has renal failure and has home dialysis everyday, we moved in together 3 months ago and then i realised how much he has gone through on his own.
I now care for him (when he lets me as hes very independant) he needles himself and i remove them, my 5 yr old is alongside him eating and chatting whilst dialysing. He has good and bad days, he has had 2 transplants and both have failed (he has fsjs).
Obviously he has a fistula which has matured greatly, now our children arent his by blood they are from my first marriage which isnt a problem, they have regular contact with their grandparents but not their "father". grandparents had them today and brought them back, my partner had gone to darts, so they started "condescending" the pipework in our house was terrible etc.... then was me and my partner getting on ok and FINALLY poor thing have you seen the state of his arm!!!!!!!!!!!!!!!!!!!!!!!!!!! my god, i said well they aint that big you know and they continued yes they are two large lumps blah blah blah
Now im feeling really down, hes very aware of people staring and makes him upset and me too as we are normal people living normal lives, problem is i dont want to tell him as will hit the roof and be very asleep, but, i talk in my sleep
i so badly want to protect him from all the bad in this world i love him so much
words fail me
I now care for him (when he lets me as hes very independant) he needles himself and i remove them, my 5 yr old is alongside him eating and chatting whilst dialysing. He has good and bad days, he has had 2 transplants and both have failed (he has fsjs).
Obviously he has a fistula which has matured greatly, now our children arent his by blood they are from my first marriage which isnt a problem, they have regular contact with their grandparents but not their "father". grandparents had them today and brought them back, my partner had gone to darts, so they started "condescending" the pipework in our house was terrible etc.... then was me and my partner getting on ok and FINALLY poor thing have you seen the state of his arm!!!!!!!!!!!!!!!!!!!!!!!!!!! my god, i said well they aint that big you know and they continued yes they are two large lumps blah blah blah
Now im feeling really down, hes very aware of people staring and makes him upset and me too as we are normal people living normal lives, problem is i dont want to tell him as will hit the roof and be very asleep, but, i talk in my sleep
i so badly want to protect him from all the bad in this world i love him so much
words fail me
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