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  • #16
    Re: Newbie and Needing Support

    Thanks for the good words.
    Ireally felt good when I left there.
    I never add salt to anything, don't even own a salt shaker.
    When we have company for the holidays my daughter-in-law brings her salt
    shaker over. Never use it in cooking either, only in baking.
    Have been trying to follow the diet some, so think that is helping.
    She said we were going to try and keep it right where it is and then i
    should be ok.
    go for blood work next week if it is good then don't have to see her till
    Dec.
    Thanks

    Comment


    • #17
      Re: Newbie and Needing Support

      I am also a newbie to this forum. Although it is not for me that i am here. I am trying to learn as much as possible about ckd. It is my only brother and my aunt who have this. The last 2 members of my family. From what i have been able to find and understand my brother is stage 4. He has 1 kidney. Tired all the time, itchy legs, numbness in finger tips, loss of color in nails, dr had told him the 1st of sept he had just shy of 20% . Can someone talk to me about this? My aunt has 2 kidneys at 21%. I dont know what to look for, expect or understand terms. Thank you

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      • #18
        Re: Newbie and Needing Support

        They probably need to find a good nephrologist and start making preparations for dialysis or transplant. I know it sounds harsh but that's the way it is. You should probably encourage them to join this forum too. It's not really as bad as it sounds.
        Whatever does not kill me makes me stronger...Neitzsche
        Flip

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        • #19
          Re: Newbie and Needing Support

          Welcome, Alonda. You are a good person to be concerned about your brother's and your aunt's health condition. The best site for information, in my opinion, is www.kidneyschool.org. They explain everything and the information is presented in modules so that you don't get overwhelmed. You can print out any of the information that you want to share with your brother and your aunt. Good luck to you all. Come back often and ask questions. There is no such thing as a dumb question, so ask away.
          To the stars through difficulty!

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          • #20
            Re: Newbie and Needing Support

            Thank you Eaglewomen for keeping us posted on your biopsy. I started my Procrit shot yesterday and hopefully that will help me feel better. Of course I have a nasty virus that is going around so while in the office getting my injection I was given more drugs because I now have an upper respratory infection and bronchitis. Oh boy, so if it's not one thing its another but hopefully after I get over that and continue taking my injections I will start to feel better. I am still seeing bubbles in the toilet so I know I am still spilling protein, it just wont seem to stop. I just dont know, but all of you have helped so much by responding. You dont know how much it means to know that all of us are here for one another and we are all in this together. Thanks to all of you for your posts, it keeps me going!

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            • #21
              Re: Newbie and Needing Support

              ChefNancy, THANK YOU SO MUCH for sharing the www.kidneyschool.org Oh my gosh, that has been a lifesaver. I go there often, I can look at different modules when I need to and it has really been an eye opener. Again, thank you so much for sharing this great information. XOXO

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              • #22
                Re: Newbie and Needing Support

                You are welcome. I always share that site because it was the most helpful of all the sites I visited as a newbie.
                To the stars through difficulty!

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                • #23
                  Re: Newbie and Needing Support

                  Hi,
                  Just got my blood results from last week, didn't talk to the Neph or even her nurse, it was someone else in the office so hope I got the right resluts, when her nurse gets back will have her send the results.
                  She said everything was better-
                  Creatinine was1.01
                  GRF was 55
                  I'd say that is a lot better, have been drinking lots of water and trying to follow the didney diet.
                  but she did say I need to go to the hospital and have an iron infusion. what is that and how do they do it?
                  tried to find it online and got no results.
                  Thanks

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                  • #24
                    Re: Newbie and Needing Support

                    Hang in there, I am at stage 5 with a GFR = 12. I am not sure when I am to start PD but and quite sur it will be sooner than later.

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                    • #25
                      Re: Newbie and Needing Support

                      Eaglewoman, those are great results! You are in a good position to prolong your time before dialysis by following the renal diet and taking any medications as prescribed. It could be years before you have to do anything more. Just keep your nephrologist appointments and keep following your diet. The iron infusion is probably because you are anemic. It is a short IV infusion of iron that is better absorbed than iron taken orally. It is not painful and only takes about a half hour.
                      To the stars through difficulty!

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                      • #26
                        Re: Newbie and Needing Support

                        Thanks for the info. The girl I talk to today didn't give me a lot of extra info
                        just that I had to go to the hospital for iron infusion.
                        Hope to get to talk to the Neph tommorow or at least her nurse so
                        I can ask a lot of questions.

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                        • #27
                          Re: Newbie and Needing Support

                          I got to talk to the Neph assistant today.
                          Said the dr was real pleased with my results, except for the iron,
                          they have me scheduled Mon at 8am for the iron infusion, she said
                          it would take 4 hours, (guess i better take a good book) but wouldn't need anyone to drive me home. Then have to see my family dr. for an iron evaluation.
                          Nice day in Colo. but have some weather coming in on Mon.

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                          • #28
                            Re: Newbie and Needing Support

                            I am surprised that the iron infusion will take that long. I get mine during dialysis, so I guess I don't have a good concept of how long it takes if you are just doing that. If your iron levels are low, you should start to feel better within a few days after the infusion. They really do help.
                            To the stars through difficulty!

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                            • #29
                              Re: Newbie and Needing Support

                              I am diagnosed with stage 3 kidney disease and I am having a ct scan with dye....is it safe to have dye at this stage of my disease and has anyone done that too??? any permanent change in creatinin levels?? please help

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                              • #30
                                Re: Newbie and Needing Support

                                thanks Chef nancy for the info. since i don't hve a clue to anything thats going on.
                                I didn't realize that the kidneys could come that far back up, my goal was to
                                maintain it at 26%. so am pretty pleased.

                                As for the dye during a scan my Neph told me anytime they do something like that to be sure and tell them you are a kidney patient and there is soemthing different they can use, and to clear everything with her first. Good luck.

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