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QUESTION ABOUT FISTULA/LABS very imp.

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  • #16
    Re: QUESTION ABOUT FISTULA/LABS very imp.

    I am really excited to read all these posts. I had called my doctor's office this morning to have a sonogram of my arm to make sue the fistula was doing fine. Of course sshe would not let me in. I am not on dialysis but would like to know if the fistula is progressing along properly. I feeling blood pumping at the ends but not in the middle. She said all should be okay. Do I have reason to worry? Got the fistual on August 15, 2011. Really trying to ensure diet is okay. But that is a crazy thing within itself. LOW SODIUM? LOW PHOSPHORUS? GLUTEN FREE (alergy to wheat)? LITTLE DAIRY (lactose intolerant); ETC ETC ETC This is all so crazy. But I have had Lupus Kidney disease since 1989. So I guess I have lived a long itme with it. Not looking forward to dialysis at all. but I am willing to do whatever it takes to live! Was on chemo () 1998-2001. On celcept since 2001. Initially the dose was too high and I could not walk or anything for weeks. Much better now.
    I FIGHT ANY NEGATIVE THOUGHTS TO KEEP A POSITIVE OUTLOOK OF LIFE!

    Stage 5 CKD / Non diabetic, Controlled HBP / Diagnosed with SLE - Feb 1975 / Remission - July 2003 / Diagnosed with Lupus Kidney Disease - 1989 / Fistula installed - Aug 2011 / Ballooned - May 2012 / May not be candidate for kidney transplant or PD(Blood transfusion; stomach hernia repair, caesarian birth, etc.)
    http://jmirenal.blogspot.com (MY JOURNEY)

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    • #17
      Re: QUESTION ABOUT FISTULA/LABS very imp.

      jenjen,

      I agree... I would do my best to hold out for stem cell research and/or whatever other cures they can come up with. They are doing a lot in the field which is awesome. Good for you staying on the diet and watching your potassium. I know the diet can be SOOo difficult at times. You should be proud of yourself. hang in there... hope you get to be one of the people to reach a cure before needing transplant.

      God Bless,

      Lana
      TRANSPLANT SCHEDULED NOV 14, 2011 THANKS TO MY AMAZING HUSBAND!!!
      Today oct 11th.Still no dialysis -and at 9% GFR,
      think i'm gonna make it!!!

      Diagnosed 2005 CKD3.
      Benign Glomulersclerosis- not hereditary, no known cause
      Non-diabetic, normal BP
      Hospital error 2008 caused me to plummet straight to CKD5
      07/2011 -CKD 5 -GFR 11 - Not on Dialysis
      Awaiting transplant, doing eval, hoping for live donor match

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      • #18
        My husband is at 11 GFR and his doctor has not told him he needs to prep for dialysis yet. His protien, calcium, etc. are fine. He does have a problems with his potassium once in awhile, but otherwise I guess the time to prep is based on other things besides GFR number.

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        • #19
          What is BUN? I see it talked about occasionally, but what does it mean in regards to lab results?

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