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  • Scary Test Result

    Hi all,

    Great forum!

    Anyway I had a creatinine test in December of 2009.

    My results were : Creatinine 1.1 GFR - 82.

    I just had another creatinine test as well as a BUM.

    My results were : Creatinine 1.2 GFR - 74 - Bum 13

    I am gravely concerned I am in the beginning of CKD. I am 25 years old non African American. My blood pressure is fine and there was protien detected in my urine.

    Should I be worried?

  • #2
    Re: Scary Test Result

    Hello and welcome. I agree with you--it is a great forum. You said you were concerned about being in the early stages of ckd. Did your Dr. tell you that you have ckd or are you looking at your labs on your own? If your Dr. has confirmed that you have ckd, it looks to me that you are in the early stages. You can stay at the early stages for many many years.

    Your creatinine is slightly elevated, but your BUN is within the normal range. Dr.s also look at protein in the urine to detect ckd. Have you seen a Nephrologist yet? Generally when you are diagnosed with ckd you will see a specialist who will run more extensive tests (blood work and maybe ultrasound) to get a better idea of whats going on.

    I would suggest that you talk to your Dr. about your concerns and ask questions. When you have your next blood draw, be sure your well hydrated. If your dehydrated your creatinine level can go up.

    I know all of this can be scary, but over time, as you learn more about ckd it gets much easier to accept. And the people here on the forum are a great source of comfort.

    Stay in touch,

    Toni
    May you always have Love to share, Health to spare, and Friends that care


    Acute Kidney Function Loss 12/07 - GFR 39
    Current GFR 46 - Stage 3 - Controlled HBP

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    • #3
      Re: Scary Test Result

      Thanks for the response

      My Dr. has not diagnosed me, I am merely coming to the conclusion after looking at my results. Although, I will be seeing my Dr in early July and will be brining it up to him. I have Kaiser Permanente so I see a bunch of different doctors. The one that ordered the blood test is not my regular doctor.

      How many years can I stay in the early stages? What can I do to maintain where I am at now? What is the percentage of people that eventually reach end stage renal failure and require transplantation? What is the prognosis for those who need transpant in getting one and having the body accept it?

      So many questions!

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      • #4
        Re: Scary Test Result

        Help? -
        It is good to have questions, however everyone's situation is different, so it is hard to generalize. It depends on what is causing your function to decline, and sometimes your age or lifestyle.

        Many people live with declined function and their kidneys do not reach end-stage, and some kidneys decline rapidly. The availability of a transplant is a problem, and many people wait years. Transplant centers include their success rates in their public information and it is part of their rating. Most I have seen are over 95% at one-year post-transplant. I don't believe they share after a year, but rejections are most likely the first year.

        Reading old posts might be helpful and you can see others' situations. Maybe you will come up with other questions

        Missie
        Diagnosed FSGS 1998
        Related Transplant 2004
        Unrelated Transplant 2009

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        • #5
          Re: Scary Test Result

          Hi again, I completely understand your fears, concerns and the need to have your questions answered. With ckd every person is different with different circumstances. I will share a little of my situation. I was diagnosed at stage 3 a couple of years ago following an illness. I had a history of long term high bp without medication (big mistake). I also had a past of 2 serious kidney infections and chronic bladder infections. And I took my share of ibuprofin which is hard on the kidneys. I have these issues under control now so hopefully I can slow the progression of ckd. I had 3 different Dr.s tell me I could stay at stage 3 for 20 yrs. which is what I hope to do. I now take blood pressure meds, lost weight and exercise. I cut out adding salt to everything, cut back on protein and I drink alot of water and never take Ibuprofin. Decreased Tylenol too. I try not to stress out, but not too great with that! This is approved by my Dr. for me with my situation. I basically take better care of myself. As far as your other questions -- I'm sorry, I can't answer them. I'm sure there are others who can. But prepare a list of questions for your Dr.

          I hope the best for you. Keep us posted.

          Toni
          May you always have Love to share, Health to spare, and Friends that care


          Acute Kidney Function Loss 12/07 - GFR 39
          Current GFR 46 - Stage 3 - Controlled HBP

          Comment


          • #6
            Re: Scary Test Result

            So true that every person has a different story to tell. I was diagnosed with a genetic disease PKD, stage 3 about 4 years ago. Just this past spring did I move into stage 4. My creatine is 2.1 and my GFR is 27. With PKD, I have cysts that will continue to grow and form until I no longer have kidney function. So as you can see, there are many reasons for CKD. For me I eat as little as salt as possible, avoid caffene, and go light on protein. But, that is what works for me. Definately talk to your Dr. and ask as many questions as you can that will help you feel comfortable with your diagnosis. And of course, any questions you may have for this forum are welcome. The people here have lots of good information and moral support.

            Good luck in your journey and please keep us posted!
            Phil:4:13: I can do all things through Christ which strengthens me.

            Stage 4 PKD / Current Creatine 2.06 / Current GFR 27

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            • #7
              Not to worry too much ,but defenilly see a nephrology that is a must.Good luck

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