My husband has Wegeners Granularmutosis and has been on immune suppressant drugs and may other prescriptions for 20 years. Last October we were told his kidneys were failing and he would need a transplant. We are working with the VA to get on the list and things are moving along - he is not on the list yet. He has 2 sisters who are willing to give a kidney but they have to wait to be tested until he is on the transplant list. Mean time we have lots of Dr appointments and things to take care of, I work full time out of the home and my husband is medically retired from the Navy. A couple months ago he started having panic/anxiety attacks. The Dr has given him sleeping pills and anxiety meds since he has so much going on in his head that the lack of sleep is causing the problems.
My question is does anyone else's loved one have this problem? I am at my wits end not knowing what to do. I have to work and he knows that - he does not want anyone else to come and stay with him. He has developed mobility issues and now has a walker, is that something others are having problems with also? He is not on dialysis and the Drs claim he is not to the point of dialysis yet (they want him vomiting and diarreia before he needs it?).
What more do I do? It is my duty as his wife to take the best care possible but as I am only 39 and he is only 43 I need to work or need the government to pay me to stay home with him.
I'm hoping this is all temporary and will be resolved with dialysis or transplant but in the meantime can someone tell me if this is normal???
Thank you for your help.
My question is does anyone else's loved one have this problem? I am at my wits end not knowing what to do. I have to work and he knows that - he does not want anyone else to come and stay with him. He has developed mobility issues and now has a walker, is that something others are having problems with also? He is not on dialysis and the Drs claim he is not to the point of dialysis yet (they want him vomiting and diarreia before he needs it?).
What more do I do? It is my duty as his wife to take the best care possible but as I am only 39 and he is only 43 I need to work or need the government to pay me to stay home with him.
I'm hoping this is all temporary and will be resolved with dialysis or transplant but in the meantime can someone tell me if this is normal???
Thank you for your help.
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